Hosting a Rare Disease Day event in your school, university or hospital is a great way to commemorate the day and raise awareness in your community. You can download the toolkits provided by NORD on this page. NORD may also be able to provide speakers through our Patient/Caregiver Speakers Bureau.
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Whether it’s a lobby tabling event or something more elaborate, recognizing Rare Disease Day in your hospital or medical center makes an important statement about commitment to rare disease patients. Read about what others have done and download helpful resources here.
Students organize Rare Disease Day events at campuses across the US. NORD is happy to help with suggestions, resources and – when possible – speakers. Campus events promote awareness and provide an important learning opportunity for students preparing for health-related careers.
For the past several years, NORD has provided a curriculum supplement for high school teachers to download and use for Rare Disease Day that has been very well received. That resource is available here, along with other suggestions for high school students and teachers.
Children of all ages can learn important lessons about understanding and acceptance through Rare Disease Day events with an anti-bullying message or other age-appropriate themes. NORD welcomes the interest of parents and teachers in organizing classroom events and supports their efforts with downloadable resources.